Angelman Syndrome Walk-A-Thon

Peanut's Peeps Team had a great time at the 2008 Walk-A-Thon. This was my fourth year participating in the walk and each year it gets bigger and bigger. There were over 340 people walking....over 100 more people than last year. We had beautiful weather and I had tons of fun with my peeps! Aunt Michelle and Mikenzie drove over 10 hours to come walk with us. Debie and her family have been at every walk with us...including this year. Makenzie and Nathan, my friends from preschool, brought their moms and dads. James even came to walk with us! We had our own little tricycle gang that rode the entire 1.3 miles with a little help from all the big people walking. Thank you to everyone who came to walk with me. Also, a huge thank you to everyone who made a donation. Dad, Mom and I are so blessed to have you all in our lives. You can check out the video Mom made to see pictures of the Peanut's Peeps Team.

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Please Say Prayers for a Cure for AS

Mom learned about this article today.
http://spectrumpublications.com/index.php/April/May-2008/Spectrum-Magazine-Category/a-long-shot-pays-off.html
We just know there is going to be a cure for Angelman Syndrome. Please say prayers for this doctor as he continues his research into finding a cure for AS. How exciting will it be when I can talk and talk and talk and talk and talk! Better have your phone ready 'cause I'll be calling everyone! Also, if possible, please donate to the Angelman Sydrome Foundation through the Firstgiving link to the right of this posting. It is research such as this that the ASF helps to fund.

Forever Friends Festival

Today at preschool we had our Forever Friends Festival. In the morning, my friends and I decorated our playground with streamers and drew with chalk on the sidewalks. We made friendship necklaces and headbands. In the afternoon when our parents arrived, each class performed their favorite song. My class did the rap version of Humpty Dumpty in which my favorite line is "Now ain't that funky!" Then our parents all got up to dance with us! The most special part of the day was wishing good luck to our classmates who will be going to kindergarten next year. They all received diplomas and told us which kindergarten they will be going to. My friend Alejandro will be going to the same school that I'll go to in a year! How cool is that...I already have a friend at my new school and I haven't even been there yet! All of the rest of us got certificates of recognition for what we bring to the class. My award was for "outstanding achievement for being our 'cheerleader' in our classroom." The second most special part of the day was that we got to eat ice cream with sprinkles on it! I'm going to miss all of my friends who will be starting kindergarten in the fall.

Dinner Is At My House!

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I very much enjoy helping out around the house. I'm also a very good helper at school. I take turns with my classmates having different jobs around the classroom. Tonight I got to pick the side dish for dinner and helped make it. Check out my video of all the ways I helped with dinner tonight! Mom and Dad said someday I'll have my own house so I need to practice! Once I get my house...you're all invited over for dinner!

My First 5K!

Today I completed my first 5K! Mom and I walked in the Colorado State University - Pueblo Run that benefits the Athletic Department. We didn't set any world record times but I pedaled my trike the whole way! It was alot of fun. We walked with Mikenzie and her Mom. Plus, I got to see alot of my friends after the race. This picture is me stopping at the water station that Dad and the basketball team were running. It was at the top of a really big hill so I was definitely ready for a drink! With this 5K under my belt, I'm all ready for the upcoming Angelman Syndrome Walk-A-Thon!

Angel in the Corner - In Honor of Ashley

Mom and I made this video in honor of Ashley. Ashely is a little seven year old girl with Angelman Syndrome who went to heaven this week. This song is very special to me and Mom because it talks about how little kids see angels that protect them. In the video, the first quotes are from Ashley's mom that she shared on the Angelman Syndrome parent listserve awhile ago. The last quote is from Erin, Maggie's mom. Erin wrote a beautiful letter to Ashely that she shared on the listserve. Please keep Ashley's family in your prayers.

Future Artist or Author!

For a long time I have loved to draw...especially on my magna doodle. The past couple of weeks I have become a very serious drawer and writer. When I am drawing I get a very intent look on my face...anyway...that's what Mom tells me! Mom took a picture of one of my recent masterpieces. I have certain things I like to draw most...circles, m's and curlie-q's! Today in Speech Therapy I drew alot and used my Dynavox to talk about the shapes, colors and letters. My Speech Therapist and I have also started to work more on saying words with my mouth. So far I can say sounds like h, s, da, ba, la, f, ah and p. Not sure why, but Mom had tears in her eyes today during my Speech Therapy session...she called them "happy tears!" This morning I said a word that sounded like "grandpa" after Mom pushed my Grandpa button on my talker. I said it over and over again cause Mom kept wanting to hear it and then she called Dad into the living room to listen also. Guess that's another skill, like my jumping, that I could have saved to reveal just before bedtime...guess I got a little ahead of myself!